For whatever reason — you wanted to show off your
makeup, it makes you itchy, you believed the messaging
that COVID is endemic (what does that actually mean?), you just don’t think about it anymore — you made a
choice that actively excludes people like me from
participating not only in an event like a convention,
but society at large. And yes, it is a choice. Every
time you step out into the world without a mask on
your face, you have made a decision that your very
good reason, whatever it is, supersedes the right of
disabled and at-risk people to exist safely in your
orbit.
Well, hold on, you say. It’s not any one individual’s
fault, it’s the inadequate public health messaging.
Isn’t that what you’ve been saying?
And I have. In the past, I have talked about how it is
unconscionable that health authorities have thrown
their hands up and rescinded guidance that would have
saved hundreds of thousands
of lives and prolonged a pandemic that, to hear them
tell it, has been bested.
It hasn’t.
Worst of all, the financial motivation that we all
know is driving this premature victory lap isn’t even
being fulfilled. Long COVID and other post-COVID
complications are costing the global economy
one trillion a year.
Meanwhile, article after article handwrings about
nobody wanting to work anymore, about the sagging
college application scene, about declines in military
enlistment, and the strain on our healthcare systems.
All of this is very much the fault of our leaders, who
have decided the political ramifications of “normalcy”
are more important than the health and lives of the
400 million
people living with long COVID across the globe, the
immunocompromised folks who are increasingly being
shut out of
every conceivable public space, and the disabled community which has been screaming
into the wind about our marginalization since before
the virus even hit US soil.
But I want to be very clear. You are helping them do
this.
This hard but important post captures something I've wanted to
express for years but have never found the words (or the
courage) to say out loud. I try very, very hard to avoid
getting outright angry at the people in my life who take no
precautions against COVID. I tell myself over and over that
their behavior is a product of larger structural forces that
shape their understanding of themselves and of reality. This
helps. It keeps me sane in an insane world.
And when I talk to people about COVID, I am as
non-confrontational as I know how to be. I frame everything in
terms of my own safety measures and say nothing about
theirs. This keeps me sane as well, because I do not have the
energy or the skill or the grace to try to convince everyone
I…
1oz pretty good well whisky (Evan Williams 100 Proof), 1oz
pretty bad well whisky (Four Roses Yellow Label), 1oz
totally decent vermouth (Dolin), 3ds Angostura bitters,
one brandied cherry
I take pride in my cocktail mixing. I've put in a lot of work
into honing my judgment of flavor combinations, learning how
to construct an effective cocktail recipe, and building a
stable of excellent ingredients. Whenever anyone comes to
visit my house, I do my best to give them a beverage
experience that's perfectly tailored to their desires, whether
it's sweet or bitter, punchy or mild, alcoholic or not.
Although sometimes experimentalism takes me in a direction
that is not worth repeating, by and large I believe the drinks
I make are excellent.
But excellent is not always what's called for.
Liz
and I used to love going out to bars. Our signature move was
to take off work early of an afternoon, show up just as the
doors opened around 4pm or so, and just shoot the breeze with
the bartender during the easiest hours of their shift.
Bartenders are great conversation because they're always up to
something else in their lives, and the best ones
also care a lot about the craft of serving people
just what they want. We'd stick around for a few hours, get
some snacks, maybe order dinner if the bar served it or head
out for pizza, and end up home by 8pm feeling like we'd had a
full night out.
All that ended, of course, in 2020. Other than a few
mostly-outdoor visits during the vaccine honeymoon[1], we haven't been back to a bar since, and every day I miss
that experience of lazily sipping on the latest Negroni
variant while merrily chatting with someone who an hour ago
was a total stranger to me.
For Liz, that experience was wrapped up inseparably with the
particular flavors of happy hour, during which bars served
cheaper drinks off a special menu to draw customers. Happy
hour drinks are usually well-known classics such as a
Manhattan, and they're usually substantially less fancy than a
cocktail bar's primary menu. They'll often use only "well"
ingredients, the inexpensive stuff that the bar buys in bulk
to form the backbone of cocktails that are then made more
flavorful with higher-shelf ingredients.
So when that's where Liz's mood takes her, I put away my
high-end vermouth and adulterate my usual mixing whisky.
Sometimes an excellent experience calls for mediocre
flavor, and I try never to let my pride get in the way of
mixing the right drink for the moment.
Our cheeky term for summer/fall 2021, in the
all-to-brief gap between getting vaccinated and
vaccine-resistant COVID variants taking over the world,
when people at large were still taking common-sense
precautions despite COVID numbers being lower than
they've ever been since. In some sense I miss those days
even more than I miss the era before the pandemic,
because in those days I really believed that people…
The classic box fan CR-Box was invented during the
COVID-19 pandemic and is THE most cost effective
method to clean the air. They have
been shown
to be remarkably effective and outperforming most
commercial HEPA filters on the market. It can also be
scaled up as there have been many CR box builds where
entire schools came together to provide one per
classroom.
This article is legitimately helpful, but I'm mostly posting
it because I find it extremely amusing that (at least as of a
year ago) the best-in-class air filter by cost and among the
best overall is literally just taping a bunch of filters to a
box fan yourself. Hilarious and easy on your wallet!
But what's even funnier is Joey's #1 recommendation:
The PC fan CR box was a recent invention to find a
method to achieve high clean air delivery rates with
very low noise. Noise is the greatest limitation of
in-room air cleaners and PC fans are the best option
to address it. There are no other air cleaners on the
market that have the capability to supply 150 lps of
clean air at 35 dBA.
Nothing comes close.
The only thing better than than taping a bunch of filters to a
box fan? Taping them to a bunch of PC fans instead! Granted
the ones linked here are a little more sophisticated
than that, but elsewhere on his site Joey presents one that
absolutely is just fans and tape:
A photo inside a building looking out at a
parking lot and sky. The sky is shockingly,
saturatedly orange. The inside of the building
is clear lit in a white bordering on austere.
On September 9th, in the height of COVID lockdowns, I
woke up and quickly concluded that 2020 had reached
climax and the world was ending. Naturally, I had to
go into the office that day.
The above photo from that day is untouched, I haven't
even fixed the small cropping complaints I have with
it, the orange was even more saturated in person. It's
probably the best photo I've taken. This was the sky
the entire San Francisco Bay area woke up to; our
entire world cast in an orange light, unable to see
the sun.
I had to bike over two rather large hills to get to my
job's soon to be abandoned office to clear my desk's
personal items, in a timeslot I had signed up for a
month prior to minimize my COVID exposure to
colleagues. Of course business MUST proceed as usual,
even when every fiber of my being is screaming at me
that this is an emergency. Fortunately the air at
ground level was, counter to everyone's instincts,
pristine. You could do a full cardio routine outside
and be fine. The danger was impending, literally
looming overhead, suspended by air currents, but not
quite touching us yet.
The attitude in the office was... Distraught. Myself
and three other colleagues were emptying our desks,
picking our way through bins of electronics to find
hardware we might've found ourselves needing after six
months of work suffusing our homes. What few
conversations we had felt like both parties were
gently dissociated, everything about our situation
seeming so surreal and alien that there was no way it
was as close as it felt. The first human contact I'd
had in months and we couldn't even find the words to
be kind to each other, we were too scared.
On my way out through the lobby I looked south and saw
the view above. I won't pretend to have instantly
recognized all the meaning and parallels I've found in
it about that day and year. I took a minute to line up
the photo before getting back on my bike and hauling
ass home. The air started to have the occasional hint
of smoke in it, I had to book it before the danger
reached ground level.
This was the last community space where I felt fully
included. This was the last community space where I
could meet a new person by chance, and not have my
mask be a social barrier. In other community spaces,
people do not try to socialize with me. Unmasked
people avoid me so long as I am wearing a mask. I have
conducted experiments. During times of
low-transmission, I have experimented with taking my
mask off in community events where people previously
had ignored me despite my generally outgoing
personality. Suddenly, everyone becomes very
interested in talking to me. People welcome me to the
space as if I am new. I tell people that we had
actually met before—multiple times, in this same
space. They ask where I had been this whole time. I
tell them, right here, the whole time, wearing a mask.
At the next event, I will put my mask back on, and
those same people will go back to ignoring me when I
greet them by name. Kol Tzedek was the only space
where this was not an issue, because everyone was
wearing a mask.
[...]
I wish we could have negotiated. I wish we could have
agreed to compromises. I wish it was not just a
venting session where fifty disabled people cried in
our own ways and a middle-aged cis woman took notes
with a blank facial expression. I remember at one
point, she asked me why I do not simply attend virtual
services. I am grateful for the existence of virtual
services in this world, but to suggest that they are
comparable to an in-person community space is a joke.
If virtual services were just as good as in-person
services, then why don't the able-bodied people just
attend virtual services? Why did I donate hundreds of
dollars to fundraise for an expensive new
ADA-compliant building for the synagogue? Why would I
give 5% of my annual income to a local synagogue just
to attend virtual services? There are plenty of free
online options I could have gone to instead.
Shel's essay about her former synagogue rescinding their mask
requirement for services and in doing so effectively barring
their disabled community members from full participation is
painful to read, but it's also one of the best articulations
I've seen of the grief and alienation of being disabled[1]
during a pandemic. This experience is particular to the Jewish
community in Philadelphia, but at the same time it is one of a
pattern of moral failures that have been happening since the
pandemic began and people en masse started facing the
immediate question: are you willing to sacrifice your comfort
to give other people space to exist?
This is a rawly emotional post that slides towards despair at
the end, and I do want to put back on that. I don't at all
blame Shel for feeling that…
I think most people stabilized their warped sense
of time by other means. Instead of accepting that
the pandemic continued on, that we failed to contain
it and so would need to incorporate its ongoing
reality into the stories we tell ourselves about our
own lives, they instead transformed the fantasy of after into their reality. After the pandemic, after the lockdowns, after
our world ruptured. They were able to interrupt the
prolonged uncertainty that the pandemic had brought
to all of our lives by erecting a finish line just
in time for them to run through it. And as they ran
through it, celebrating the fictional end of an
arduous journey, they simultaneously invented a new before. This is the invention of memory.
The Pandemic became something temporally contained,
its crisp boundaries providing a psychic safeguard to
any lingering anxieties around the vulnerability and
interdependence of our bodies that only a virus could
show us. No longer did it threaten to erupt in their
everyday lives, forcing cancellations and illnesses
and deaths. It was, officially, part of The Past. And
from the safety of hindsight (even if only an
illusion), people began telling and re-telling the
story of The Pandemic in ways that strayed from how it
all actually went down. It was a way to use memory as
self-soothing.
This is an intense, touching piece on the way people's minds
have been shaped by the pandemic, and the way that shape is in
turn determined by their—our—failure en masse to
handle the reality of the pandemic. It's another way of
looking at the same issues I was driving at in
COVID Denialism and Disability Justice, and I similarly found it helpful to bring myself some calm
(if not closure) to the pain of seeing people act so
heartlessly.
Solid chance this is my last selfie to go out on "social
media" as such, and so I hope you'll forgive a bit of
nostalgia. Posting selfies, especially early in transition,
was hugely important for me. For most of my life up to that
point I had regarded my looks with suspicion if not outright
hostility, and the selfie became the medium through which I
began to take ownership of my appearance and develop a sense
of style. The first time I looked at a picture I'd taken of
myself and realized "oh. I'm hot" was a huge
milestone for me.
Posting selfies to social media was an inseparable part of
this. As my style became something I actively put effort and
care into, having people appreciate it became a reminder that
that work was doing something. It wasn't the dreaded numbers,
it was the people: people whose taste and style I also saw and
appreciated, people who I was friends with and people
I just saw around.
When COVID began, I went from taking and posting selfies
almost on a weekly basis to nearly not taking them at all. I
no longer felt I had any reason to dress up. Wearing lipstick
felt foolish when it would just get ruined by a mask. I wasn't
getting any new clothes, because I hate having to remember to
send back online orders I don't like. My trademark blue hair
was growing out, because even after the vaccine made it
feasible to be masked indoors with strangers I couldn't bear
the pain of trying to find a salon that still required them. I
didn't realize until my roots had overtaken me how much the
blue had become a part of my self-image, how much it hurt to
look in the mirror and not see the self in my heart.
Little by little, I pulled myself out of that hole. Although
the pandemic is very much still present and I am very much
still taking precautions, I found ways to allow my sense of
style to flourish in between those precautions. I'll put on
lipstick just because I feel like it.
Liz
took careful measurements so I could do online shopping with
minimal risk of send-backs. Every now and then I'll even strap
on a P100 respirator and go to a physical store. I asked
around and found
a local salon
that not only still requires masks, but is queer- and
disabled-owned.
And I started taking selfies again. I took selfies to give
myself a reason to care about my appearance again. I took
selfies as a reward for putting in the work to make myself
look and feel good. I took selfies to send to friends, I took
selfies to flirt, I took selfies with pals, I took selfies at
beaches and forests and birthdays and the precious few
weddings that were safe enough for me to attend. I took
selfies to remind the world that I existed, and to…
This is a post whose seeds have been bouncing around in my
head for years. I always intended to write it up and publish
it on Cohost, and so the twilight of that storied website
seems like as good a forcing function as any.
In this post, I seek to understand and explain the pervasive
phenomenon of COVID denialism from the perspecitve of
disability justice, specifically as someone who remains
extremely cautious and anticipates doing so indefinitely. It's
not intended to excuse this behavior—denialism is actively
harmful to everyone the denialist interacts with and
fundamentally eugenicist in effect whether or not in
intention. But understanding and even empathizing with people
who believe falsehoods and do harm can be valuable, especially
when they make up such a huge portion of the world and for
many of us are inescapably part of our networks and
communities.
COVID in the Social Model of Disability
The first crucial thing to understand is that, if you're at
least on board with the basic idea that COVID denialism is a
pervasive problem,
COVID-19 has already disabled you. Even if it
didn't give you long-term side effects, even if you're lucky
enough never to have caught it, you have been disabled by it.
Or to be more precise: you're disabled
with respect to COVID-19. The specific agent of your
disability is the society that subjects you to snide remarks
and outright harassment for wearing a mask, that closes off
opportunities for social interaction and employment to you,
that makes it impossible for you to exist within it without
putting your health at risk.
This is an analysis based on
the social model of disability, a major branch of disability theory that emphasizes the way
disability is created by a society's failure to provide
accommodations for certain bodies and minds rather than
intrinsic aspects of those bodies and minds themselves. To use
a lightly clichéd example: my severe nearsightedness doesn't
function as a disability, because I exist in a society[1]
that accepts it as "normal" and provides easy access to
socially unremarkable assistive devices (glasses), or even
invisible assistive devices (contacts) if I so choose. But my
sleep disorder is a disability—society doesn't
consider it "normal" in the same way, and so it's seen as my
personal failure and I have to work to make sure it doesn't
affect my relationships[2]
or employability.
Using this model, if you exist in a society that has accepted
the uncontrolled spread of COVID-19 as normal, the attempt to
avoid catching this disease is itself a disability.
Society is organized to systematically deny accommodations
like mask mandates, sanitizing ventilation[3], lockdowns and contact tracing, and free access to vaccines,
prophylatics, tests, treatments, and protective equipment.
Depending on the specific activity and your risk tolerance,
public existence while taking reasonable COVID precautions
ranges from requiring serious equipment and preparation to
being outright impossible. Even if your body isn't any
different than it was in 2019, you…
When Cohost goes, with it goes the era of my life I spent on
social media. Now that I've tasted the rich fruit of what's
possible, I'll never be able to go back wholeheartedly to a
site where my timeline is constantly deluged with the latest
atrocity, where there's no room for me to write an essay,
where I can't even see and share porn. I have loved ones I've
followed since before we were even friends whom I won't follow
anywhere anymore. It is, inescapably, a paradigm change in how
I use the internet.
And in many ways, that's fine. Social media brought me many
good things, but even before Cohost I was getting deeply sick
of the Twitter model. This is not an intrinsically necessary
mode of human interaction, and in a lot of ways it's better
not to have it at all than to have it in an unhealthy form.
But. But. There's still a pandemic, deep as
world may be in denial, and even with all the mitigations and
precautions available it's still an order of magnitude harder
to spend time with people in person and another again to enter
new spaces and make new friends.
While I've been grieving Cohost, this is something my heart
keeps returning to. This was the last great space where I
consistently made new human connections. And the way the world
is right now, I don't know what can replace that, not just in
terms of technology but in terms of life as a whole. The world
is so much smaller to me than it was five years ago, and so
the loss of a deeply valued space hurts all the more keenly.